Peculiarities of Legal Relations in Genomics
https://doi.org/10.17803/lexgen-2024-3-2-7-21
Abstract
The intertwining of technological manipulations of the human genome with other contemporary developments in biological science, medicine and law results in the need for adequate legal regulation of these areas. The article considers the development of legal relations in genomics within a humanistic biosocial and political-legal framework. Genomic legal relations are shown to gradually acquire a norm-referenced nature inherent in the present stage of biosocial development. Important current questions in humanistic thought include freedom of choice, protection of human dignity, and the development of awareness in the use of modern medical achievements. Due to the need to consider biomedical technologies, including cloning, the use of stem cells, euthanasia, and genetic profile of a person, contemporary biojurisprudence is fast becoming a cutting-edge field in the development of legal understanding.
About the Author
O. A. Puchkov
Ural State Law University named after V.F. Yakovlev
Russian Federation
Russian Federation
Oleg A. Puchkov, Doctor of Science (Law), Associate Professor, Professor of the Department of Theory of State and Law named after S.S. Alekseev
Ekaterinburg
References
1. Abramov, A.L. (2016). Reasonable risk, and an urgent need for medical activities: problem definition and delimitation. Bulletin of the Russian Law Academy, (1), 29–32. Available at: https:// journal.rpa-mu.ru/Media/journal/archiv/%D0%92%D0%B5%D1%81%D1%82%D0%BD%D0%B8%D0%BA_%E2%84%96%201_2016%20(%D0%BF%D0%BE%D0%BB%D0%BD%D0%BE%D1%81%D1%82%D1%8C%D1%8E).pdf. (In Russ.).
2. Anisimov, A.P., Popova, O.V. (2020). The issue of ethical and legal principles in the field of genomic research. Law and State: The Theory and Practice, (9), 82–86. (In Russ.).
3. Berg, L.N. (2022). Formation of an interdisciplinary genomic legal theory. Electronic supplement to “Russian Juridical Journal”, (4), 27–35. (In Russ.). http://doi.org/10.34076/22196838_2022_4_27
4. Berg, L.N., Lisachenko, A.V. (2024). Legal support for the safe use of genetic and genomic information: a textbook for universities. Moscow: Urait Publ. (In Russ.).
5. Colussi, I. A. (2019). Biolaw and ‘the dual-use dilemma’: The freedom of scientific research in relationship with ‘traditional’and emerging sciences and technologies. In: Biolaw and Policy in the Twenty-First Century: Building Answers for New Questions (pp. 239–255). Cham: Springer International Publishing. https://doi.org/10.1007/978-3-030-05903-3_16
6. Ershov, V.V. (2020). Regulation of legal relations. Moscow: Russian State University of Justice. (In Russ.).
7. Gerasimov, A.M. (2019). Moral limits of genomic research and biotechnology as the basis to forme a legal space of innovative medicine. Genes & Cells, 14(2), 62–67. (In Russ.). http://doi.org/10.23868/201906021
8. Khalfina, R.O. (1974). General doctrine of legal relations. Moscow: Yuridicheskaya literature Publ. (In Russ.).
9. Kornev, V.N. (2021). Biojurisprudence is a new direction in law and legal science of the XXI century. Justice, 3(4), 8–15. (In Russ.).
10. Kravets, I.A. (2023). Russian public law and biojurisprudence in search of bioethical well-being: ethical and legal aspects in the process of constitutionalization. In: Academic works. Russian Academy of Legal Sciences (is. 23, pp. 147–158). Moscow: Publishing group ' Yurist'. Available at: https://lomonosov-msu.ru/file/event/7552/eid7552_attach_367f6876df76c028b96295cdd7e-3da3e42bfd9b2.pdf (In Russ.).
11. Malysheva, Yu.Yu. (2020). Edge need and reasonable risk in medical activity: unresoloved issues. Education and Law, (1), 122–124. (In Russ.).
12. Lyublinskii, P.I. (2010). Freedom of the individual in criminal proceedings: measures to ensure that the accused does not evade justice. Saint Petersburg: Senatskaya tipografiya. (In Russ.).
13. Müller-Hill, B. (1997). Human genetics and mass murder. Chelovek, (4). http://vivovoco.astronet.ru/VV/PAPERS/MEN/MULHILL.HTM. (In Russ.).
14. Nevzgodina, E.L. (2015). The problem of the correlation of the absolutely necessary and reasonable medical risk in health care. Herald of Omsk University Series ‘Law’, (1), 126–130. (In Russ.).
15. Rendtorff, J.D. (2023). Foundations of Bioethical Decision-Making in Bioethics and Biolaw. In: Handbook of Bioethical Decisions. Volume II: Scientific Integrity and Institutional Ethics (pp. 289–310). Cham: Springer International Publishing. http://doi.org/10.1007/978-3-031-29455-6_19
16. Romanovsky, G.B. (2004). Eugenics and genetics: legal aspects. Pravovedenie, (4), 184–193. (In Russ.).
17. Sal'nikov, V.P., Stetsenko, S.G. (2013). ‘Bioyurisprudentsiya’: the problem of differentiation from similar legal structures. Legal science: history and the presence, (10), 190–197. Avaialble at: http://fonduniver.ru/wp-content/uploads/2019/08/un_2013_10-pb-1.pdf. (In Russ.).
18. Sariev, O.M. (2015). Justified risk in medical activities and the conditions for its permissibility. Tambov University Review. Series: Humanities, (5), 246–251. (In Russ.).
19. Semyonovikh, A.E. (2021). Epistemological issues of research of the subject and object of legal protection in genomic relations. RUDN Journal of Law, 25(4), 872–887. (In Russ). http://doi.org/10.22363/2313-2337-2021-25-4-872-887
20. Siluyanova, I. V. (2001). Bioethics in Russia: values and laws. Moscow: Grant Publ. (In Russ.).
21. Smolensky, K.R. (2006). Defining life from the perspective of death: an introduction to the forced symmetry approach. University of Chicago Legal Forum, 2016(1), 41–86. Available at: https://chicagounbound.uchicago.edu/cgi/viewcontent.cgi?article=1387&context=uclf
22. Townend, D. (2018). Conclusion: harmonisation in genomic and health data sharing for research: an impossible dream? Human genetics, 137(8), 657–664. https://doi.org/10.1007/s00439-018-1924-x
23. Vidalis, T. (2022). The Emergence of Biolaw. The European Experience and the Evolutionary Approach. Berlin/Heidelberg, Germany: Springer.
24. Walters, L. (2012). Genetics and bioethics: how our thinking has changed since 1969. Theoretical Medicine and Bioethics, 33(1), 83–95. http://doi.org/10.1007/s11017-012-9210-8
Review
For citations:
Puchkov O.A. Peculiarities of Legal Relations in Genomics. Lex Genetica. 2024;3(2):7-21. (In Russ.) https://doi.org/10.17803/lexgen-2024-3-2-7-21
Views:
219
Email this article 